amc

Rare Disease Day 2025: When Rare is Your Everyday

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Tomorrow, February 28th, 2025, is Rare Disease Day—a day that holds deep personal significance for my family. It’s a day to stand with millions worldwide, raising awareness and advocating for those living with rare conditions. It’s also a reminder that while each rare disease may affect a small percentage of people, the collective impact is … Read more

June is Arthrogryposis Awareness Month

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Greetings and welcome to June, which marks Arthrogryposis Multiplex Congenita (AMC) Awareness Month! If you’ve been following the blog section of this website or my other blog, The Greene Affect, you’re already familiar with my personal connection to Arthrogryposis as my son was born with this condition. Arthrogryposis Multiplex Congenita (AMC) is a term used … Read more